The general prevalence of Proteus syndrome is less than 1 case per 1,000,000 live births. Diagnosed people are, usually, the most disfigured ones. On the other hand, the disease is often undiagnosed, especially in the undeveloped parts of the world. It is estimated that only about 120 of them are still living. The syndrome was first identified in 1979, and since then only about two hundred cases have been reported worldwide. The disorder was named after a Greek sea god Proteus, who had a power of shape shifting. Proteus syndrome, also known as Wiedemann’s syndrome, is a rare congenital disorder characterized by skin tissue overgrowth, accompanied with degenerative bone development and tumors over half the body.
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